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Reflex Sympathetic Dystrophy Syndrome (RSDS), Neurological Disorders, Chronic Pain

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Canadian Reflex Sympathetic Dystrophy Network:"Diagnosis is determined through X-rays, three phase bone scan, skin tests, joint fluid analysis, and thermo graphic studies. Sometimes the phentolamine test is used. Thermography is more sensitive than any other diagnostic tool when diagnosing CRPS according to Dr. H. Hooshmand. He states that diagnosing CRPS without thermography is like diagnosing a heart attack without an EKG. It should be noted that the CT scan, EMG, and MRI studies may be normal during the first stage of CRPS. Along with the tests, signs and symptoms of CRPS are taken into account. All the pieces of the puzzle must fit to render a proper diagnosis." http://www.canadianrsd.com/ ****************************************************** International Reflex Sympathetic Dystrophy Foundation©:"Reflex Sympathetic Dystrophy (RSD), more recently known as Complex Regional Pain Syndrome (CRPS) is a disease brought on by damage or trauma to the Sympathetic Nervous System. It can be brought on by an accident, as in my case, minor trauma or surgery (i.e., arthroscopy of the knee or shoulder, carpal tunnel surgery, disc herniation surgery, removal of neuroma, rib resection, tarsal tunnel surgery, ulnar nerve surgery, etc.)" Eric M. Phillips P.O. Box 1145 Lakeville, Massachusetts 02347 USA Phone: 508-946-9828 Fax: 508-946-9888 http://www.rsdinfo.com/ ****************************************************** NINDS Reflex Sympathetic Dystrophy Syndrome Information Page:"Reflex sympathetic dystrophy syndrome (RSDS) is a chronic condition characterized by severe burning pain, pathological changes in bone and skin, excessive sweating, tissue swelling, and extreme sensitivity to touch. The syndrome is a nerve disorder that occurs at the site of an injury (most often to the arms or legs). It occurs especially after injuries from high-velocity impacts such as those from bullets or shrapnel. However, it may occur without apparent injury. One visible sign of RSDS near the site of injury is warm, shiny red skin that later becomes cool and bluish.The pain that patients report is out of proportion to the severity of the injury and gets worse, rather than better, over time. Eventually the joints become stiff from disuse, and the skin, muscles, and bone atrophy. The symptoms of RSDS vary in severity and duration. The cause of RSDS is unknown. The disorder is unique in that it simultaneously affects the nerves, skin, muscles, blood vessels, and bones. RSDS can strike at any age but is more common between the ages of 40 and 60, although the number of RSDS cases among adolescents and young adults is increasing. RSDS is diagnosed primarily through observation of the symptoms. Some physicians use thermography to detect changes in body temperature that are common in RSDS. X-rays may also show changes in the bone." http://www.ninds.nih.gov/disorders/reflex_sympathetic_dystrophy/reflex_sympathetic_dystrophy.htm ****************************************************** Reflex Sympathetic Dystrophy Syndrome Association Of America:"If Hell were a clinical medical condition, it might look something like reflex sympathetic dystrophy or RSD. The disorder actually goes by many names, but they all describe the same thing: a constant, intense burning pain in a limb that once begun, never goes away. The slightest touch, even a slight breeze can bring agony. The affected limb often becomes swollen. Many people have difficulty moving it at all." http://www.rsds.org/ ****************************************************** Reflex Sympathetic Dystrophy Association of California:"The Reflex Sympathetic Dystrophy Syndrome Association of California is a non-profit corporation comprised of individuals dedicated to promoting education in the medical condition known as Reflex Sympathetic Dystrophy Syndrome (RSD), to render assistance to those people who suffer from RSD, and to assist groups or research facilities in an attempt to develop effective diagnosis, treatment and cure for Reflex Sympathetic Dystrophy (RSD) and all Complex Regional Pain Syndromes(CRPS)." RSDSA of CA PO Box 771 San Marcos, CA 92079-0771 Phone / Fax (760) 744-3266 rsdsa-ca@abac.com http://www.rsdsa-ca.org/ ****************************************************** RSD Web:"Reflex Sympathetic Dystrophy (RSD) is a Devastating Disease. Most people who have this disease suffer tremendously because of the pain and the loss of the use of one or more limbs. RSD rips a person's life apart. Often, we loose our jobs, our spouses, and all of life's activities that are so often taken for granted become difficult or impossible so we do suffer." http://home.ptd.net/~paulbarb/rsdweb.htm ****************************************************** RSD UK:"RSD UK Alliance - is an informal community of websites and support groups dedicated to raising awareness of Complex Regional Pain Syndrome (commonly known as RSD) and to supporting RSD patients and carers. Whilst each group retains its individual character and style, the community as a whole seeks to maintain responsible and professional standards in the promotion of its aims. RSD UK is proud to be part of this community." http://www.rsd-crps.co.uk ****************************************************** RSDHope:"REFLEX SYMPATHETIC DYSTROPHY SYNDROME (RSDS) is a disease that affects millions across the United States. Early diagnosis and proper treatment after diagnosis is the key towards helping those afflicted with RSDS.Education of Health Professionals and Patients is a major tool towards helping patients to avoid living a life of pain caused by this progressive disease of the Autonomic Nervous System. Because the lack of information contributes to the hopelessness of RSD Patients , our organization, and in fact our name, RSDHope, is dedicated to filling that gap." 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Send comments and mail to Andrew Lopez, RN Last updated by Andrew Lopez, RN on March 13, 2023

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